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sandeepnaik

@sandeepnaik

Newly diagnosed with Type 1 diabetes and honestly feeling completely overwhelmed

I was diagnosed with Type 1 recently and honestly I'm still trying to process everything.

I've been home for a few days now and I feel like my entire day revolves around my sugar. I'm constantly checking my CGM, worrying about what I'm eating and wondering if I'm doing something wrong.

Food is probably confusing me the most right now. I normally eat rice or roti pretty regularly and now I'm almost scared of eating anything with carbs because I keep thinking my sugar is going to shoot up.

I know I'll probably get used to all of this eventually, but right now it feels like a lot.

For those of you who've had Type 1 for a while, what were your first few weeks/months like? What helped you stop overthinking everything?

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archana15
@archana15

The first few weeks were the worst for me because I was watching my CGM every 5 minutes 😂

Eventually you start seeing patterns. Don't expect yourself to understand everything immediately. One thing that helped me was keeping a rough note of what I ate and what happened afterwards. After some time you start knowing which meals are easy for you and which ones need more attention.

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sandeepnaik
@sandeepnaik

This is literally me right now. I keep opening the CGM app even when I checked it like 2 mins ago lol.

Did you completely avoid rice in the beginning?

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archana15
@archana15

No, I still ate it, just smaller portions at first while I was figuring things out. Rice can hit me pretty fast, so I had to learn what works for me.

You'll probably notice your own patterns after a while too. I wouldn't change your insulin based on what random people online are doing though. That's something to work out with your diabetes team.

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@abhaykumar

I still eat rice too. It took some trial and error to understand how my body reacts to different portions.

I wish someone had told me earlier that Type 1 doesn't mean every food you used to enjoy is suddenly off limits.

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@deepti11

If you haven't already, try to get an appointment with an endocrinologist and a diabetes educator. I had so many questions after I got home that I didn't even know what I was supposed to ask at first.

The educator helped a lot with the everyday stuff like meals, lows, exercise and what to do when things don't go the way you expected.

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sandeepnaik
@sandeepnaik

I have an endo appointment but it's still a couple weeks away. That's partly why I'm freaking out.

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@deepti11

Yeah that waiting period sucks. I would just follow the plan you've been given for now and call the clinic if something really doesn't make sense. You don't have to figure out everything before that first appointment.

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@sunilkumar18

One thing that became a habit really quickly for me was always carrying something for a low.

I keep glucose tablets in my bag and usually have something near my bed too. After a while you stop even thinking about it.

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@harshvardhan

Same. I went out for a walk once without anything on me and regretted it pretty quickly 😅

Now I have a small diabetes kit that just comes with me everywhere.

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sandeepnaik
@sandeepnaik

What do you normally keep in the kit?

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@harshvardhan

Usually something for a low, my glucose meter and strips as backup, a few pen needles and whatever insulin supplies I need if I'm going to be out for a while. Mine is pretty basic.

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@rashmi04

Try not to let every CGM number decide whether you're having a good or bad day.

I did that constantly at the beginning. I'd see a high number and immediately feel like I'd messed something up, then I'd get a nice flat graph and think I'd finally cracked the code 😂

It took me a while to see the CGM as information instead of a score.

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@ajaychauhan

This was a big one for me too. A bad glucose day doesn't mean you're bad at managing diabetes.

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@gauravmishra

You definitely don't have to give up rice or roti completely. I still eat both.

What changed for me was paying more attention to portions and learning which meals were easier for me to manage. Some combinations surprised me because I never really thought about how carb heavy the whole plate could be.

It gets much less scary once you've seen the same meals a few times and start understanding how your body responds.

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sandeepnaik
@sandeepnaik

This actually makes me feel much better. Everyone around me is acting like I can only eat vegetables now 😭

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@gauravmishra

Haha yeah, people suddenly have a LOT of opinions about what you should and shouldn't eat.

You'll figure out what works for you. Just make sure the medical side of it comes from your actual diabetes team and not everyone's random advice.

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@rajivsharma

Also keep a regular glucose meter around as backup. If my CGM gives me a reading that feels completely wrong, I like being able to double check instead of sitting there wondering if the sensor is acting up.

Mostly though, give yourself some time. The stuff that feels like a full-time job right now eventually becomes much more routine.

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